Katie Johnstone
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DHSC consultation crib sheet!!! With four days to go, here is a set of answers you can copy or modify as you respond online to the government's consultation on its plan for ME/CFS. #pwME https://mecfs.substack.com/p/dhsc-consultation-crib-sheet
06:21 AM - Oct 01, 2023
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Katie Johnstone
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A disturbing job advert has come to light which shows that outdated, unscientific and harmful attitudes to ME/CFS are still alive and well in the NHS. https://mecfs-med-ed.org/2023/08/21/job-advert-shows-that-nhs-trust-flouts-nice-guidance/ #pwME #medical #NHS #MyalgicEncephalomyelitis
06:05 AM - Aug 21, 2023
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Katie Johnstone
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03:27 AM - Aug 04, 2023
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MEAction NOW
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#BatemanHorneCenter
Check - New 7-part series validates and sheds light on one of the most ambiguous aspects of #MECFS , post-exertional malaise/post-exertional symptom exacerbation (#PEM /#PESE ).

Share it W your medical pros to help improve health care for #pwME . #LOngCOVID
#OpenMedF
#medspout
02:23 PM - Aug 02, 2023
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Katie Johnstone
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I've just discovered this fantastic 2018 long video on the PACE trial, with talks by Brian Hughes and David Tuller. An important historical documentation.
https://thesciencebit.net/2018/12/14/here-is-a-video-of-my-lecture-on-the-pace-trial-controversy/
11:19 AM - Jul 04, 2023
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Katie Johnstone
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ME/CFS Medical Education Campaign has sent an open letter to the Medical Schools Council. A friend is looking at perhaps making it into something people can sign online. https://mecfs-med-ed.org/2023/07/01/an-open-letter-to-the-medical-schools-council/ #pwME
11:21 AM - Jul 03, 2023
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Katie Johnstone
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So far I'm finding it much easier to find people I know from Twitter on here than it has been on Mastodon. We'll see how this goes!
02:35 PM - Jul 02, 2023
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Katie Johnstone
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Hello world.
11:43 AM - Jul 02, 2023
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