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ptot4mecfs
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ptot4mecfs
@ptot4mecfs
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Orange caution sign MECFS: No G.E.T. Always screen for P.E.M. with ME/CFS and Long Covid
06:37 PM - Apr 13, 2023
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ptot4mecfs
@ptot4mecfs
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👏👍 ...time for a healthcare revolution...
Gabriel Bosslet @gbosslet
“Few, if any, other developed nations tolerate the levels of avarice, manipulation, and profiteering in health care that the US does.”

We have met the enemy and he is us

https://jamanetwork.com/jo...
04:11 PM - Feb 01, 2023
04:00 PM - Apr 29, 2023
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Jamie Schler
@lifesafeast
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11:49 PM - Apr 28, 2023
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Beth RN
@Bpurkey
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Looking for more medical professionals to follow #medspout #science throw your @ in comments or echo if that’s you!
02:16 PM - Apr 20, 2023
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ptot4mecfs
@ptot4mecfs
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Graded exercise is anti-science wrt #MECFS & #LOngCOVID . GET is the preset goal of exercise wrt any or all of duration, time, or intensity. "Not grading" for one domain is still grading! Stop it.

#noGET #physicaltherapy #occupationaltherapy #medspout #KnowPEM
03:08 PM - Apr 25, 2023
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ptot4mecfs
@ptot4mecfs
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A history of crappy research and underfunding of quality research for post-infectious illnesses has left patients gaslit, marginalized, and medically mistreated. Read peer-reviewed material with a critical eye.

#MECFS #LOngCOVID #EBPractice #medspout #physicaltherapy #occupationaltherapy #noGET
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01:41 AM - Apr 25, 2023
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ptot4mecfs
@ptot4mecfs
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Clinicians & researchers who refuse to learn decades-long science bh #MECFS (& now #LOngCOVID ) somehow can justify this persistent ignorance while they adopt diagnoses such as #functionalneurologicaldisorder . 🤷♂

#learn2readscience #sciencenotbelief #physicaltherapy #occupationaltherapy #medspout
07:45 PM - Apr 23, 2023
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Miriam
@Miriam
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#WelcomeEveryone
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04:59 AM - Feb 10, 2023 (Edited)
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ptot4mecfs
@ptot4mecfs
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Here's a great collection of new studies on #MECFS & #LOngCOVID . Thanks to Amy Mooney, OT for guest editing and to #WORKJournal for publishing!

https://content.iospress.c...
05:35 PM - Apr 21, 2023
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ptot4mecfs
@ptot4mecfs
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New article: "Exercise Pathophysiology in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Post-Acute Sequelae of SARS-CoV-2: More in Common Than Not?"

#MECFS #LOngCOVID #medspout #physicaltherapy
#occupationaltherapy

https://journal.chestnet.o...
06:48 PM - Apr 19, 2023
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ptot4mecfs
@ptot4mecfs
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#ME /CFS #LOngCOVID #medspout #medicalprofessionals #physicaltherapy #occupationaltherapy #KnowPEM
https://youtu.be/dpjGLLbWZ...
Video
Long COVID: Where's the Cure?! - YouTube

As many as 1 in 3 people who catch COVID-19 get #longcovid. People like Dianna Cowern (@physicsgirl) and *millions of others* are still sick, some of them ha...

06:21 PM - Apr 19, 2023
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ptot4mecfs
@ptot4mecfs
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#physiotherapy #MECFS
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02:55 PM - Apr 19, 2023
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ptot4mecfs
@ptot4mecfs
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Good tip from good doc, "How has your pain impacted your function?" vs. stupid 0-10 pain scale for pw/ #complexchronicillness

#NEISvoid #disability #physicaltherapy #occupationaltherapy #medicalprofessionals
01:38 PM - Apr 17, 2023
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ptot4mecfs
@ptot4mecfs
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At times feels like nothing happens but w those who've had #MECFS for decades this seems revolutionary. Keep momentum + more happening!

https://www.healthrising.o...
healthrising.org
IMG
Signs of Change? Did Two ME/CFS and Fibromyalgia "Moments" Just Occur? - Health Rising

Several signs suggest chronic fatigue syndrome and fibromyalgia are taking it to the next level.

03:21 PM - Apr 16, 2023
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ptot4mecfs
@ptot4mecfs
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Still time to register for #MassME webinar today for 4 p.m. EST. (They do record and make publicly available later.)

#physicaltherapy #occupationaltherapy #medicalprofessionals

https://www.massmecfs.org/...
01:55 PM - Apr 16, 2023
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ptot4mecfs
@ptot4mecfs
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Do healthcare providers know why pw #complexchronicillness #MECFS are losing weight? Bc wt. is "normal" doesn't mean no struggle to get adequate nutrition. Not the way to lose weight! Loss of function can make inability to prepare/access food.

#disability #physicaltherapy #occupationaltherapy
12:26 PM - Apr 16, 2023
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ptot4mecfs
@ptot4mecfs
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Here's our conversation with Harry Leeming, Founder & CEO of #Visible , the app for Pw/ #Long COVID and #MECFS . Free symptom tracker is available now with Visible+ coming this summer. Exciting to hear about this much needed tool!

#physicaltherapy #occupationaltherapy

https://youtu.be/c6pcmW_cg...
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PT/OT 4 ME/CFS: April 2023: Harry Leeming, Visible Founder & CEO - YouTube

Harry Leeming shares with us the most current information on the Visible app developed for people living with Long COVID and ME/CFS.

05:58 PM - Apr 15, 2023
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ptot4mecfs
@ptot4mecfs
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Everyone likes cake! 🍰 Have a piece and support #openmedicinefoundation & #MECFS research! ☕
Blue Sunday Tea Party for ME 5/14/23. Dress in blue, have a slice of cake, or 2, a cup of tea, post on social media & donate money you would have spent purchasing to Open Medicine Foundation.
03:13 PM - Apr 15, 2023
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MonzaMayhem
@MonzaMayhem
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"We feel like no one's trying to help us. No one is trying to find a cure. I feel like I'm getting left behind in life with all my friends. They're continuing on with their lives."
#CovidIsNotOver #LOngCOVID #MECFS
skysports.com
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How long Covid ruined a tennis prodigy's dream and a rower's Olympics | 'I leave the house every two weeks' | Tennis News | Sky Sports

Tanysha Dissanayake and Oonagh Cousins discuss the impact long-Covid has had on their careers; Dissanayake was a promising tennis star, while Cousins was training for the Tokyo Olympics before testing positive for the virus

03:03 PM - Apr 13, 2023
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ptot4mecfs
@ptot4mecfs
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A view into the challenges of practicing mindfulness while living with #ME /CFS and a good reminder to practice #TraumaInformed healthcare. #physicaltherapy #occupationaltherapy

https://paceandbepresent.c...
paceandbepresent.com
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PACE and Be Present

10:56 PM - Apr 14, 2023 (Edited)
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Radio Attitude
@Radio_Attitude
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Click on this NPR link so NPR sees traffic coming from Spoutible in order for them to consider creating an account here.

Also please ((ECHO)) this spout to spread the word. Thanks!

https://www.npr.org/2023/0...
npr.org
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NPR to stop using Twitter after being falsely labeled : NPR

NPR will stop using its 52 official Twitter accounts after being falsely labeled by the social media platform. The public radio network's leader says he has no faith in Twitter's decision-making.

05:59 PM - Apr 12, 2023
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ptot4mecfs
@ptot4mecfs
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Orange caution sign MECFS: No G.E.T. Always screen for P.E.M. with ME/CFS and Long Covid
06:37 PM - Apr 13, 2023
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ptot4mecfs
@ptot4mecfs
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Are you a healthcare provider & don't know what to do w #MECFS or #LOngCOVID ? STOP. Don't hurt them. Don't invalidate them. Offer this, then go find a mentor to learn from & take CE/U!

#physicaltherapy #occupationaltherapy

https://batemanhornecenter...
batemanhornecenter.org
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ME/CFS Guidebook - Bateman Horne Center

04:43 PM - Apr 13, 2023
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ptot4mecfs
@ptot4mecfs
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Check out our talk w Dr. Ilene Ruhoy, M.D., Ph.D. neurologist, #MECFS , #EDS , #CCI and #Chiari expert discussing "Headache & MECFS". Lots of information pertaining to chronic headache, not just MECFS.

#headache #migraine #physicaltherapy #occupationaltherapy

https://youtu.be/5kUiw3OqG...
Video
PT/OT 4 MECFS: March 2023 Dr. Ilene Ruhoy Headache and MECFS - YouTube

Neurologist and ME and EDS expert, Dr. Ilene Ruhoy, M.D., Ph.D. presents the many known types of headache experienced by pwME. She discusses medical imaging ...

02:39 PM - Apr 13, 2023
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ptot4mecfs
@ptot4mecfs
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We're a group for PTs/OTs by PTs/OTs w or caring for ones w #MECFS , #EDS , #migraine , #Dysautonomia , #MCAS , #CCI , #tetheredcord , #Chiari , #idiopathicintracranialhypotension , #endo , etc. Share FB link w #PT #OT to educate in #complexchronicillness . https://www.facebook.com/g...
02:30 PM - Apr 13, 2023 (Edited)
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