MEAction NOW
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Trish Greenhalgh @trishgreenhalgh
Our new article in BMJ on postural orthostatic tachycardia syndrome (POTS) in long covid:
https://www.bmj.com/conten...
03:02 PM - Feb 24, 2023
04:52 PM - Mar 05, 2023 (Edited)
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Sara Atkins
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In response to MEAction NOW.
I just hope they don't forget those of us with POTS pre-covid in all of this...
05:36 PM - Mar 05, 2023
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MEAction NOW
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In response to Sara Atkins.
I doubt they will - also, we won't let them.
They are actually building on existing data - like they didn't know why some people get #POTS and some don't. Also why some #MECFS patients get POTs and some don't. Hopefully, seeing #LOngCOVID unfold, will allow for better understanding.
05:39 PM - Mar 05, 2023 (Edited)
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Sara Atkins
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Not my experience. Locally POTS patients are competing for doctors with the Long Covid patients but they have clinics for the Long Covid patients and we are losing our docs. Studies are not including POTS patients unless they developed it from Covid.
In response to MEAction NOW.
07:07 PM - Mar 05, 2023
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MEAction NOW
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In response to Sara Atkins.
Okay, that sucks. MECFS doctors are inundated as well. The LongCovid clinics haven't been of much help to these people... It's a lot of the same old tests that they don't show what's wrong.
We certainly need more doctors to get their CME credits in POTS and MECFS etc.
We need more research funding
07:18 PM - Mar 05, 2023
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