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Wall Flower @WallflowerAnyone here with #ALS experience?12:54 PM - Jan 12, 2024
My spouse was diagnosed on Wednesday. Neuro advocated for a second opinion, so I made an appointment when I got home. It’s 5 weeks away!
In the meantime, no meds. No therapy. No support. No information. Zip. Zero. We are beside ourselves not knowing anything.
Last updated: January 25, 2023
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Last Updated: January 25, 2023
PRIVACY POLICY
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We do not sell any personal information under any circumstances whatsoever. We disclose only that personal information that is necessary for the third party to deliver their specific service and we take all reasonable measures to ensure they keep your information fully secure and not use it for any purpose other than the one under which it was disclosed. All third parties are carefully screened so we can ensure that there are adequate controls in place in accordance with applicable laws.
We may use cookies, web beacons, tracking pixels, Google analytics and other tracking technologies on our Platform to help customize our services and improve your user experience. Cookies are small files that a website or its service provider transfers to your computer’s hard drive through your web browser. Session cookies are only stored on your computer or mobile device while you use our Platform and are automatically deleted when you close your web browser or mobile application. If you are located in Canada, the United Kingdom, or the European Union, we will request your consent before storing session cookies. Most browsers are set to accept cookies by default. You can remove or reject cookies, but be aware that such action could affect the availability and functionality of the Spoutible Platform. When you access our Platform, your personal information is not collected through the use of tracking technology. You may not decline web beacons. However, they can be rendered ineffective by declining all cookies or by modifying your web browser’s settings to notify you each time a cookie is tendered, permitting you to accept or decline cookies on an individual basis. We use third-party session cookies provided by Cloudflare’s Bot Management technology to protect our Platform from harmful automated attacks. Additionally, we may at times include or offer third party products or services on our Platform. These third-party websites or software may use cookies or similar tracking technology to help manage and optimize your online experience with us. Please note this Privacy Policy will not be applicable in case of any such third-party software and their associated cookies policy. Spoutible bears no responsibility or liability for the content and activities of these third-party links or websites.
The personal information collected and processed by Spoutible at our offices and data centres are held securely in accordance with our internal security policy and the appropriate data protection laws as and where applicable. Spoutible has implemented generally accepted standards of technology and operational security in order to protect personal information from loss, misuse, or unauthorized alteration or destruction. Unfortunately, no method of transmission over the Internet, or method of electronic storage, is 100% secure. Whilst we strive to use all reasonable efforts to protect your personal information, we cannot guarantee its absolute security. We will notify you promptly in the event of any breach of your personal information which might expose you to serious risk. We will never collect sensitive information about you without your explicit and informed consent.
Spoutible may retain your personal information for as long as it is necessary to fulfil the purpose for which it was collected, or as required or permitted by applicable laws. Typically, we retain your account information for as long as your account is active. We will cease to retain your personal information, or remove the means by which the information can be associated with you, as soon as it is reasonable to assume that such retention no longer serves the purpose for which it was collected, and is no longer necessary for legal or business purposes. All third parties are carefully screened before transfer of any personal information, so we can ensure that there are adequate controls in place and, where relevant, that such third parties are fully compliant with the applicable laws. In case any of any international transfer of personal information, Spoutible takes all reasonable steps to ensure that your personal information continues to receive a standard of protection that is at least comparable to that provided under the applicable data protection laws.
You have full control through your account settings regarding your personal information that is made available to us and how we use it. In addition to that, according to the applicable data protection laws, you also possess a number of rights in relation to your personal information. These rights include
We are committed to upholding these rights at all times. If you wish to exercise any of these rights, please send us a request that (a) provides sufficient detail to allow us to verify that you are the person about whom we have collected personal information, and (b) describes your request in sufficient detail to allow us to understand, evaluate, and respond to it as soon as possible. Please note we cannot respond to requests that do not adequately meet the above criteria.
As per the applicable laws, Spoutible has a “Data Protection Officer” (DPO) who is responsible for all matters relating to privacy and data protection and they can be reached at –
Attn: Spoutible Data Protection Officer
Address:
Spoutible Inc.
442 5th Avenue #2107
New York, NY 10018
Email: [email protected]
If you have any further questions, comments or requests regarding this Privacy Policy, please contact us at [email protected].
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