MEAction NOW
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Hello 👋🏼 Spoutible 🐳 community
I'd like to spread awareness about an illness ME/CFS that impacts 2.2 M 🇺🇲 and 17 M 🌎🌏

You must've never heard about it - it impacts me. TODAY I am HOPING🤞🏼 YOU🫵🏼 will spare a few mins to learn about it and share about it.

Thank you 🙏🏼
MEAction NOW @MEActNOW
Several studies show that #MECFS is one of the most debilitating chronic illnesses. Many patients have symptoms around the clock and have lost many of the things that really matter: social network, career, leisure activities etc. Your support may mean the world.
#MEAwarenessHour

🙏🏼 ECHO/Share

ht
03:27 PM - May 01, 2024
05:53 PM - May 01, 2024
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MEAction NOW
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thread 2/3
Me/CFS is a spectrum illness. Patients range from severe (unable to work, bed bound, unable to socialize, Walk, talk much, in many cases they can't eat properly either as they have developed allergies etc), moderate, mild.
In mild cases too, it's pretty bad due to PEM - Post Exertional Malaise.
05:57 PM - May 01, 2024
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MEAction NOW
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thread 3/3
Please see my pinned spout to understand PEM - which is a hallmark MECFS symptom.

I was severe for many years - I got a bit better, but most patients don't improve much. It's known to be triggered after infections in many cases and onset gradually in some.

Thank you for reading this message.

htt
06:00 PM - May 01, 2024
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MEAction NOW
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🔗 https://onlinelibrary.wiley.com/doi/10.1111/joim.13792 - This just dropped.
Also, work by lab of Bupesh Prusty in Germany observed the EBV reactivation in LongCovid patients in real-time

🔗 https://www.medrxiv.org/content/10.1101/2023.06.23.23291827v1
In response to Jonathan Meyers.
12:32 PM - May 02, 2024
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Jonathan Meyers
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In response to MEAction NOW.
EBV reactivation has been an active theory for decades. I personally think it's a secondary effect that contributes to the downward spiral of symptoms. ie, immune system injured and then viruses etc are reactivated. Not sure EBV is cause (though it's possible in some cases).
12:36 PM - May 02, 2024
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MEAction NOW
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In response to Jonathan Meyers.
With 95% world population already carrying it, it's going to be difficult to tell.
Keeping the faith in science 🤞🏼🤞🏼🤞🏼

Of course, heavy metal and mold detox along with other detoxing is needed for sure. Many of us are aware of this now...

Wish detox is made better accessible.🤞🏼 For it.
12:40 PM - May 02, 2024
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