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#MECFS is unimaginably isolating, especially for severe patients like Dianna. The disease just doesn't make sense; even for me, it's taken a year of caring for her every day to start to understand.
04:01 PM - May 09, 2024
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To get a sense, Dianna has spent the last year and a half in her room, unable to watch tv or read a book or spend time with friends.

She cannot walk or take care of herself. She can brush her teeth and feed herself, but not much more than that.
04:01 PM - May 09, 2024
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We can cuddle and hold hands, but sometimes that's too much for her. It's so removed from normal life, and so much worse than you could ever imagine.
04:01 PM - May 09, 2024
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