C- SALT
A
Found out today the very expensive specialty drug I had to lobby the manufacturer to cover for my son is not working, and he is not in remission. No improvement, bad side effects, and labs indicate he may now also have diabetes. Back to the drawing board. 😭
07:52 PM - Jul 07, 2023
Avatar Avatar Avatar
0
7
14
April Sparkles
A
In response to C- SALT.
Oh darn. That’s so disheartening. 🥺
08:04 PM - Jul 07, 2023
0
1
Barbara Reid
A
In response to C- SALT.
I'm so sorry to hear this! I've been there. One of the worst things about caregiving, and healthcare in general, is that a family can spend so much time doing their own research on drugs and how to pay for them. It's insane and puts so much extra burden on the ill and those caring for him/her.
07:57 PM - Jul 07, 2023
0
2
E
A
In response to C- SALT.
I'm so sorry. I'm going through a similar thing with my own specialty meds for my rare autoimmune diseases. Drug roulette isn't a fun game to have to play, especially when it's for your life.
07:57 PM - Jul 07, 2023
0
2
Wanda
A
In response to C- SALT.
Oh hell, I'm so sorry
07:55 PM - Jul 07, 2023
0
2
Klobby L
A
In response to C- SALT.
I'm so sorry.
07:53 PM - Jul 07, 2023
1
2
C- SALT
A
In response to Klobby L.
Thank you. Mama will persevere! This kid deserves a win.
07:55 PM - Jul 07, 2023
1
2

 

{{ notificationModalContent }} {{ promptModalMessage }}