Stephanie Caffrey
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Tomorrow is #RareDiseaseDay I'm going to wear stripes to show my support for my nephew with Ta-Sachs Disease. Will you, #ShowYourStripes ? If, so who for? And if you want to wear stripes to show your support for my nephew, please tag me, so I can share with my sister.
10:51 PM - Feb 27, 2023
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Mary ♿ Cairns
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In response to Stephanie Caffrey.
Several people in my family, including me, have Charcot-Marie Tooth Disease or CMT. It's part of the Muscular Dystrophy family.
Funny story, when I was a cashier at Walmart 2 nurses from a research facility in TX were talking about study they were doing. Using the records of 1 family from 2 state
10:59 PM - Feb 27, 2023
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Mary ♿ Cairns
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In response to Mary ♿ Cairns.
states they realized CMT was in the Muscular Dystrophy family. They were shocked when I told them that was my family. They didn't have our names. They knew our genders and relationship to each other. My whole line got involved in the discussion.
11:02 PM - Feb 27, 2023
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