Suz Kantner ? on Spoutible

Today is #RareDiseaseDay - #ShowYourStripes

My daughter lives with more than 1 diagnosis that is in NORD's rare disease database. Here's a bit from rarediseaseday.org, that explains far better than I can, just what #RareDiseaseDay is.

Rare Disease Day is the globally-coordinated movement on

12:12 PM - Feb 28, 2023 (Edited)

Suz Kantner ?

@SuzKantner

In response to Suz Kantner ?.

rare diseases, working towards #equity in #socialopportunity , #healthcare , and #accesstodiagnosis and #therapies for people living with a rare disease. Since its creation in 2008, Rare Disease Day has played a #critical part in building an international rare disease community that is multi-disease,

12:14 PM - Feb 28, 2023

Suz Kantner ?

@SuzKantner

In response to Suz Kantner ?.

global, and diverse– but united in purpose.

Rare Disease Day is observed every year on Feb 28 (or 29 in leap years)—the rarest day of the year.
Rare Disease Day was set up and is coordinated by #EURORDIS and 65+ national #alliance patient organization partners.

12:16 PM - Feb 28, 2023

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