Mc Crispy
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thread 1/12
As we get older, we begin collecting dates that don't bring us joy. It's one of two by the time we hit 30. Two or three by the time we hit 40. From there they kinda snowball.

4 years ago today my life was completely upended. I had taken so many precautions up to that point. My clients had taken so
11:52 AM - Mar 12, 2024
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Mc Crispy
A
thread 2/12
many precautions. We had been so safe for a month leading up to the date. We were making things work in a time of confusion.

It would be a family member of mine that would destroy everything.

I had a job I absolutely loved. I got to play with dogs all day. I spent my day running, walking, playing,
11:52 AM - Mar 12, 2024
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Mc Crispy
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thread 3/12
training, transporting, and sometimes cleaning up if there was an accident before I arrived.

I started each day with my boys, yoga, and breakfast.

4 days a week I hit the weights at the end of the day.

On weekends I would take my boys for a hike.

I took a LOT of things for granted.
11:52 AM - Mar 12, 2024
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Mc Crispy
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thread 4/12
On February 10th that year, I lost Bartholomew to a very rare cancer. The grief was intense. He and I had a stronger bond than the other boys. To say I wasn't doing well, is an understatement.

But I pushed on.

March 12th I woke up with a ghost cough and extremely fatigued. Medical offices and
11:52 AM - Mar 12, 2024
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Mc Crispy
A
thread 5/12
hospitals had just closed. I couldn't get a test because I wasn't over the age of 70. I had to rely on a phone call with a nurse to try and figure out what was going on.

The prognosis was "suspected Covid". And then things went downhill.

Every couple weeks some new and completely random symptom
11:52 AM - Mar 12, 2024
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Mc Crispy
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thread 6/12
appeared. None of it made sense. None of it seemed related, but I continued informing the nurse each time. The prognosis stayed the same. It would be months before I could get a test, and that was because I had landed in the ER on the verge of a stroke or heart attack.
11:52 AM - Mar 12, 2024
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Mc Crispy
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thread 7/12
That started a fight with the medical community that I would eventually give up on. No doctor would take me seriously. I would be misdiagnosed several times, denied even an appointment, completely ignored by one, and sent a certified letter demanding I never return by another.
11:52 AM - Mar 12, 2024
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Mc Crispy
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thread 8/12
I didn't know there were so many others in the same boat as me. We banded together, collected information, learned how to find and read studies and medical papers. We had only ourselves to rely on.

4 years later, I find myself incontinent, unable to do the minimum activity without needing hours of
11:52 AM - Mar 12, 2024
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Mc Crispy
A
thread 9/12
rest to recuperate, unable to read books, relying on autocorrect to write even a short text message, randomly forgetting what things are or how they work, hair loss that comes and goes, my vision is shit thanks to pink eye that I have more often than not, photosensitivity that limits my time in
11:52 AM - Mar 12, 2024
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Mc Crispy
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thread 10/12
the sun, and other stuff I'm forgetting.

I find no positive in this anniversary; only despair.

And then I see people out living their lives without a care in the world and I get a little resentful. To see people who think this can't happen to them.

Well let me tell you, as someone who was fit,
11:52 AM - Mar 12, 2024
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Mc Crispy
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thread 11/12
ate right, and took care of themselves, YES, it can happen to you. #LongCovid can happen to literally anyone. When those of us living with the disease shout that "you don't want this!", we mean it with our whole body and soul. Because everything can be taken from you in an instant.
11:52 AM - Mar 12, 2024
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Mc Crispy
A
thread 12/12
Get/stay boosted

Avoid crowds

Mask up in public

Take no potential symptom for granted
11:53 AM - Mar 12, 2024
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Li Milla4
A
In response to Mc Crispy.
💙🫂💙
07:35 AM - Mar 13, 2024
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Milla Mélomane
A
In response to Mc Crispy.
𝓜𝓪𝔂 𝔂𝓸𝓾𝓻 𝓵𝓸𝓿𝓮𝓭 𝓸𝓷𝓮'𝓼
🍃𝓶𝓮𝓶𝓸𝓻𝔂 𝓪𝓵𝔀𝓪𝔂𝓼 👥
𝓫𝓮 𝓪 𝓫𝓵𝓮𝓼𝓼𝓲𝓷𝓰. 💐🌿💕
03:54 AM - Mar 13, 2024
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Viviane Elbee
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In response to Mc Crispy.
My deepest condolences for your loss. I hope someone will find a cure for long covid soon.
09:10 PM - Mar 12, 2024
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Pamela
A
In response to Mc Crispy.
Thank you for sharing. I hope that they soon find a cure for long COVID. Also, I’m starting to feel more uncomfortable in my mask as I literally seem to be the last person wearing one. I appreciate the affirmation for wearing it.
09:00 PM - Mar 12, 2024
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Grandma Sharon
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In response to Mc Crispy.
I really wish I could give you a long hug. And yes, I'd cry buckets with you. ❤️
08:15 PM - Mar 12, 2024
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dariasteigman
A
In response to Mc Crispy.
I'm sorry you're dealing with this -- and that the medical community has largely abandoned you + others with long covid. It is shameful. 💔

This is why I mask, vax, and try my best to stay safe.
08:10 PM - Mar 12, 2024 (Edited)
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Pam I
A
In response to Mc Crispy.
Thank you for sharing your story. Anyone who has experienced a long term illness or is a caregiver knows how difficult it is. Healthcare in America is still not where it should be. 💟
06:11 PM - Mar 12, 2024
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Lee
A
In response to Mc Crispy.
Sending love, support and whatever extra good luck I can muster. 🍀 I'm so sorry. 💖😢
04:31 PM - Mar 12, 2024
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k Broquard
A
In response to Mc Crispy.
Thanks for sharing
So sorry that you have long COVID. I hope you feel better soon
❤️❤️❤️
02:43 PM - Mar 12, 2024
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✨Shell Russell-Nelson
A
In response to Mc Crispy.
Ohhh... I'm So Sorry to read this, Topher. We never know what someone is dealing with in this life. I'm praying for strength, comfort, & healing for you.
{{{{{{gentle 🫂 💜 hugs}}}}}
02:36 PM - Mar 12, 2024
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Tricia
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In response to Mc Crispy.
❤️🩷🧡💛💚🩵💙
01:44 PM - Mar 12, 2024
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Camara Reed she/her/we/us
A
In response to Mc Crispy.
Hugs to you and here’s hoping that you find peace and healing! 🙏🏾❤️
01:09 PM - Mar 12, 2024
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Katie Kadwell
A
In response to Mc Crispy.
❣️ I am so sorry. Thank you for sharing your story. I love your presence here and it’s even more precious knowing what you must have to go through to even post this. ❣️
12:57 PM - Mar 12, 2024
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Caryl D
A
In response to Mc Crispy.
My friend’s youngest daughter (26) has long Covid.
It damaged her lungs so badly she is on a transplant list, on oxygen 24/7, and is so disabled she has a home health aid
12:57 PM - Mar 12, 2024
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Kimberlee (Kimbrûlée)
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In response to Mc Crispy.
@Topher_Ruggles , I've known for a while that you've struggled with Long Covid but honestly did not fully understand what you've had to deal with on a daily basis. And I did not know of your personal loss. I am so sorry! 💔💔💔
12:57 PM - Mar 12, 2024
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ramona palin
B
In response to Mc Crispy.
12:55 PM - Mar 12, 2024
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Karen Dykstra
A
In response to Mc Crispy.
Thank you for sharing your history of exposure to and medical management of Covid. Im sorry to hear your health has been turned upside down and you were treated so poorly by health pros. I continue to mask in public and get vaccinated as they become available. Sending you strength and prayers.
12:54 PM - Mar 12, 2024
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Katie in KY
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In response to Mc Crispy.
My heart breaks that you have had to and continue to go thru this. I am so sorry ❤️
12:42 PM - Mar 12, 2024
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Bonnie Jean Weinman
A
In response to Mc Crispy.
The medical community treated you shamefully. There's no excuse for their mistreatment. I'm so sorry you have to walk this path. Gentle hugs to you.
12:28 PM - Mar 12, 2024
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Henning Dekant
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In response to Mc Crispy.
Horrific.
12:11 PM - Mar 12, 2024
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A work in progress
A
In response to Mc Crispy.
😢 sad to hear of your struggles.
Thank you for this important reminder.
Will continue to wish you completely well❣️
12:02 PM - Mar 12, 2024
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Just Curious About Stuff
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In response to Mc Crispy.
✌🏻💙
12:00 PM - Mar 12, 2024
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Janet aka April
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In response to Mc Crispy.
💔
11:59 AM - Mar 12, 2024
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