Mc Crispy
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thread 1/12
As we get older, we begin collecting dates that don't bring us joy. It's one of two by the time we hit 30. Two or three by the time we hit 40. From there they kinda snowball.

4 years ago today my life was completely upended. I had taken so many precautions up to that point. My clients had taken so
11:52 AM - Mar 12, 2024
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Mc Crispy
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thread 2/12
many precautions. We had been so safe for a month leading up to the date. We were making things work in a time of confusion.

It would be a family member of mine that would destroy everything.

I had a job I absolutely loved. I got to play with dogs all day. I spent my day running, walking, playing,
11:52 AM - Mar 12, 2024
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Mc Crispy
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thread 3/12
training, transporting, and sometimes cleaning up if there was an accident before I arrived.

I started each day with my boys, yoga, and breakfast.

4 days a week I hit the weights at the end of the day.

On weekends I would take my boys for a hike.

I took a LOT of things for granted.
11:52 AM - Mar 12, 2024
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Mc Crispy
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thread 4/12
On February 10th that year, I lost Bartholomew to a very rare cancer. The grief was intense. He and I had a stronger bond than the other boys. To say I wasn't doing well, is an understatement.

But I pushed on.

March 12th I woke up with a ghost cough and extremely fatigued. Medical offices and
11:52 AM - Mar 12, 2024
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Mc Crispy
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thread 5/12
hospitals had just closed. I couldn't get a test because I wasn't over the age of 70. I had to rely on a phone call with a nurse to try and figure out what was going on.

The prognosis was "suspected Covid". And then things went downhill.

Every couple weeks some new and completely random symptom
11:52 AM - Mar 12, 2024
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Mc Crispy
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thread 6/12
appeared. None of it made sense. None of it seemed related, but I continued informing the nurse each time. The prognosis stayed the same. It would be months before I could get a test, and that was because I had landed in the ER on the verge of a stroke or heart attack.
11:52 AM - Mar 12, 2024
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Mc Crispy
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thread 7/12
That started a fight with the medical community that I would eventually give up on. No doctor would take me seriously. I would be misdiagnosed several times, denied even an appointment, completely ignored by one, and sent a certified letter demanding I never return by another.
11:52 AM - Mar 12, 2024
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Mc Crispy
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thread 8/12
I didn't know there were so many others in the same boat as me. We banded together, collected information, learned how to find and read studies and medical papers. We had only ourselves to rely on.

4 years later, I find myself incontinent, unable to do the minimum activity without needing hours of
11:52 AM - Mar 12, 2024
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Mc Crispy
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thread 9/12
rest to recuperate, unable to read books, relying on autocorrect to write even a short text message, randomly forgetting what things are or how they work, hair loss that comes and goes, my vision is shit thanks to pink eye that I have more often than not, photosensitivity that limits my time in
11:52 AM - Mar 12, 2024
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Mc Crispy
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thread 10/12
the sun, and other stuff I'm forgetting.

I find no positive in this anniversary; only despair.

And then I see people out living their lives without a care in the world and I get a little resentful. To see people who think this can't happen to them.

Well let me tell you, as someone who was fit,
11:52 AM - Mar 12, 2024
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Mc Crispy
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thread 11/12
ate right, and took care of themselves, YES, it can happen to you. #LongCovid can happen to literally anyone. When those of us living with the disease shout that "you don't want this!", we mean it with our whole body and soul. Because everything can be taken from you in an instant.
11:52 AM - Mar 12, 2024
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Mc Crispy
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thread 12/12
Get/stay boosted

Avoid crowds

Mask up in public

Take no potential symptom for granted
11:53 AM - Mar 12, 2024
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Merci Merci Me
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In response to Mc Crispy.
I'm so sorry you're going through this. Covid & everything it causes is a living hellscape for so many. #getvaccinatedandboosted
12:38 PM - Mar 12, 2024
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Linda Eisenstein
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In response to Mc Crispy.
I'm so, so sorry this is what you've been facing. I have another young friend in the same boat. It's tragic that you are medical guinea pigs in a nightmare that is so misunderstood. I go by your advice. Thanks for sharing this.
12:04 PM - Mar 12, 2024
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